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I am very interested in doing more reasearch on this disorder that is so misunderstood and silent to many.
I have my treatments at the ONC/Hemo office however I must pay a co-payment each visit not to mention they dispose of good blood. I live in the Central Valley and am looking at starting a support goup. Fri, April 15, 2011 @ AM Joe, I have double mutations C282Y/ I inherited a gene from both parents.
Polyphenols are phenolic compounds, including chlorogenic acid, found in cocoa, coffee, and some teas and herbs. Something that totally surprised me if you like cereals just check out the iron content in a few of the boxes. Abdominal pain, high liver enzymes, excessive urination, and chest pains.
So having a cup of coffee/tea/milk with meals help inhibit iron absorbsption. The doctors even ordered an angiogram for me, and came back with no blockages. When his children were checked, two of three were diagnosed as Homozygous( C282Y, C282Y) and the third was Heterozygous.
Thu, March 31, 2011 @ PM I had been having abdominal pain for several months.
My liver enzymes were high for 6-7 years, but doctors said it was from having a fatty liver.
I tried again a few weeks later and again it was too low!!! was 1261 pretty high I think so have to give 1/2 bloody every 2 weeks.
I have been able to have blood work done and now it appears that my Iron is 20, Trans%Sat 8, Ferritin 7 and TIBC 257. The liver is now shot to bits but consultant has given me 4 months off treatment as a rest. I am 55 yr old male and have lost 30 kilo since treatment began.
It was not until July 2010 that I was diagnosed with C282Y/C282Y. I was the first of all family members to be genetically tested.Our Word of the Year choice serves as a symbol of each year’s most meaningful events and lookup trends.It is an opportunity for us to reflect on the language and ideas that represented each year.Also my maternal grandmother died at 40yrs from a so called heart attack.
My paternal grandmother had phelbotomys but never really understood why, and was never geneticly tested. Through testing I was told I have iron deposits in my liver. I was going for weekly phelbotomy's for quite sometime.I'm a male white 43, Italian and Irish, HH is from the Irish side of the family.